Planning a Four-Day Trip with Neurodivergent Kids

The Challenges of Travel

Planning a four-day trip with three neurodivergent kids feels like an extreme sport. It requires military-level logistics, detailed preparation, and a great deal of patience. To ensure our trip went smoothly, we took several important steps. First, we booked our plane seats well in advance. Next, we mapped out every aspect of our trip. Finally, we discussed the schedule with the kids to help manage their anxiety. Predictability is our best friend.

A Successful Trip

And it worked! We managed to stick mostly to our usual routines—maintaining the same sleep, meal, and outing schedules while staying with grandparents. The wedding we attended was stunning. Thankfully, the kids handled it just as we expected. There were lots of wins, along with a few small wobbles. But then, of course, the universe decided to throw in a little chaos.

The Disruption

On our way home, we were more than ready to board the plane. We just wanted to get home. However, a staff member informed us that our seats had changed. I politely explained that we'd specifically chosen those seats to ensure the kids' comfort and to prevent unnecessary stress. Moving at that moment wasn’t just inconvenient; it was a massive disruption to our carefully planned trip. Despite my explanation, we were still asked to move—complete with an eye-roll from the staff.

The result of this change was an hour filled with seat kicking, screaming, and frustration for us as parents. Unfortunately, this meltdowns also impacted nearby passengers. It wasn't that anyone was being deliberately difficult; it was simply a lack of awareness of our needs. This highlights a significant issue: many services and businesses are unprepared to accommodate families who require extra support. We strive to plan ahead and avoid meltdowns, but when others aren’t equipped to meet our needs, it underscores how much work is still needed for real inclusion.

The Importance of Communication

Here’s my advice for other families in similar situations: Always check ahead. Whether it's flights, restaurants, or events, find out if the places you're visiting can support your family’s unique needs. Unfortunately, there are times when you don't have the chance to explain your situation in real-time. Even when you do, it’s not always understood.

A Positive Change

Thankfully, we are starting to see some positive changes. Cerge (https://cerge.app/) is an incredible service that empowers neurodivergent families. It allows us to notify businesses about our needs in advance. Imagine booking a flight, reserving a table, or checking into a hotel and having the ability to communicate exactly what accommodations we require. There would be no awkward conversations and no last-minute stress—just a streamlined system designed for real inclusion.

The Need for Inclusion

Because here’s what we must remember: Inclusion isn’t a privilege. It’s a necessity. If more businesses actively prepared for diversity, life would be so much easier for countless families. Until that day arrives, we will continue to do what we do best—planning, preparing, and advocating when things don’t go as intended. Each time we speak up, we move closer to a world that genuinely welcomes all families with respect and understanding.

Conclusion

Traveling with neurodivergent kids can be challenging, but with proper planning and advocacy, it can also be rewarding. As we navigate these experiences, let’s continue to push for a world where inclusion is the norm. By doing so, we create a brighter future for all families.

Embrace the journey, and remember that every step we take brings us closer to a more inclusive society.